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UserID: ectopicmania Type: CurePVCs Joined: Oct 24 2013
Thread Started: Oct 24 2013 Last Post: Nov 01 2013 Last Post By: alfy12
Origin: General Topics Total Posts: 20

PVC's SUCK

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Posted Oct 28 2013#11 of 20
miss spice bombUser Since: Jun 2013Posts: 47I live in England and its hard to get an appointment with a cardiologist here too!!
I had to go through my GP just to have a 24 hour monitor fitted and he still wouldn't refer me to a cardiologist after it came back showing frequent pvc's!
It took a few trips to A&E and the A&E doctor refered me to see a cardiologist and my appointment is on the 18th of November...it seems like I've been waiting ages!!
I've had the blood work done and that came back normal! And I had an echo cardiogram done not long after I gave birth over 17 months ago and that was normal too!!
Have you had any holter monitors in the past? If not I would keep pushing for it!! And an echo as well!
Doctors don't seem to understand how disruptive these pvc's are to peoples lives!!
How many do you get in a minute ?
:-)


Eric
Where are you from?
Posted Oct 28 2013#12 of 20
ectopicmaniaUser Since: Oct 2013Posts: 15Hello again msp and welcome alf,

It's very cool to talk with people from different countries. I live in the U.S. in the State of California. Have either of you been over here before?? My wife has been to several places in Europe as her Dad still lives in Spain. I've always wanted to visit England and Australia but now with 2 boys (ages 9 and 6) it's more difficult to travel..

@Alf, Welcome and No, you are not hijacking my post. The more the better so thanks for sharing your story....I think you should definitely get an echo test to check the structure of the heart and they can check for Mitral Valve prolapse which can cause arrhythmias. Over here in California it is usually the next step they do after having the Holtor Monitor or they also have an Event Monitor which you have for 2 weeks. My echo test I had showed I had some valve regurgitation. Of course they are not concerned about it. lol
If you are taking Magnesium I recommend trying Ubermag Px. You can order from poliquinstore.com and you can order from anywhere in the world. I actually have some on order myself. Most magnesium supplements don't contain enough elemental magnesium as most contain oxide which does not absorb well.

@msp. Your husband had a heart attack at 26!!! That is so young. Does he have heart disease? or is this hereditary in his family. That is scary!! I guess it is true that PVC's don't usually correlate with heart disease but I know you will taken more serious if you do have PVC's with heart disease.

I often find myself wishing my wife got PVC's even though I know it's wrong to say that because really I don't wish these upon anyone...I guess it's because I feel all alone when they are happening and you just wish someone else could experience what you are going through
Posted Oct 28 2013#13 of 20
ectopicmaniaUser Since: Oct 2013Posts: 15Sorry I forgot to mention this. I'm sorry it is so difficult for both you to see a cardiologist and to get tests done. If you are able to see a cardiologist I would recommend seeing and Electrophysiologist as they are more of and expert with the electrical function of heart. They are the one's that perform the ablation procedure. Take care

Eric

Posted Oct 28 2013#14 of 20
miss spice bombUser Since: Jun 2013Posts: 47Hello again!!

I've not been to America or Australia but would love to go!!

My husband's family has a history of heart disease but the doctors seem to think that my husbands heart attack was caused by sudden vigorous exercise and dieting! He also gave up smoking 2 weeks before his heart attack!
He had a small blockage in one of his arteries and they cleared it, and now he's fine...he has to take meds for the rest not his life,but he's not bothered!

I think I've had to wait so long for an appointment because our healthcare is free and also they think I'm not in any danger so hence the wait!! Lol :-)

To be honest I'm not sure what the cardio can do regarding these pvc's as I can't take beta blockers,Ablation isn't an option as I have less than 10.000 per day! So I don't know what's gonna happen!
I would like to have a treadmill test to see if I'm OK as I'm scared to exercise at the moment!
And yes the loneliness you feel is horrible with pvc's as none of my friends or family get them! My dad used to get them occasionally but he passed away seven years ago so I can't ask him how he coped! Back then the pvc's never bothered me!!
I think all we can do is keep telling ourselves that we WILL be OK !! And I know this is hard but please try to ignore them as if you focus on them I'm sure they get worse!!
Take care :-)
Posted Oct 29 2013#15 of 20
alfy12User Since: Oct 2013Posts: 22Hello Eric and MSB ,

I believe what I had was an ecg. They checked my heart structure prior to hopping on a treadmill. Then treadmill to max heart rate. Then ecg again whilst my heart was beating hard. I've had Holter monitoring in the past as well as a thalium stress test. I'm also getting pulsatile tinnitus in both ears. My doctor says it is caused by fluid trapped in my ears but I'm not so sure. Also have wild blood pressure fluctuations but that could be the meds. I don't have valve problems even though that's what I was diagnosed with about 14 years ago. My original diagnosis was wrong. I see the doctor tomorrow so I'll update when done.

Cheers
Alf
Posted Oct 30 2013#16 of 20
alfy12User Since: Oct 2013Posts: 22Hello all,

Just an update. Doctor has doubled by dosage of Isoptin so now I'm on 40mg twice daily. Definitely has reduced the number of pvcs and kept blood pressure at normal levels. Have a bit of constriction in the neck but I also had that with Metoprolol as well. My pvcs have gone from 7-8 per minute to maybe 7 per hour. My doctor asked me to avoid taking non prescribed over the counter products. My magnesium and potassium levels are normal. Well, we will see how it all goes.

Cheers
Alf

Posted Oct 30 2013#17 of 20
PVCManUser Since: Oct 2009Posts: 228Thanks Alf for keeping us updated...

QUOTE:
My magnesium and potassium levels are normal. Well, we will see how it all goes.



I am often suspicious about the medical industry's terminology when it comes to their meaning of "normal" levels of electrolytes. I have read that Magnesium is one of the most abundant electrolytes in the body but also one that is difficult to absorb. When they test such levels through a blood test, I often wonder if it paints the full picture. For example, if they were to take a sample of muscle or other tissue, would they get the same results as those from the blood?

Another example of why I think blood tests aren't always accurate; is if you drink a strong cup of coffee, the caffeine will be in the blood for an estimated 45 minutes and then it's gone. But is there any residual caffeine in the body's tissues?

Just a thought.
Posted Oct 31 2013#18 of 20
alfy12User Since: Oct 2013Posts: 22I'm happy with the results of the medication so far but it's only early days. Happy to try natural solutions but my doctor made me agree to stick to her plan. She doesn't want me experimenting with over the counter products. I don't necessarily agree with her view but I'll stick to it for now.
Posted Oct 31 2013#19 of 20
miss spice bombUser Since: Jun 2013Posts: 47Alfy

So glad to hear your pvc's have calmed down!! And from quite a substantial amount too!!
Does the calcium channel blocker slow your heart rate??
I can't take beta blockers as mine can get in the mid 40's,
I might ask my doctor about those!!
I'm having a touch of anxiety today as mine are 4 per minute and are really annoying me!!
I also prefer to try the more natural approach, An A&E doc once told me to stop taking magnesium! I did stop it but now I'm trying Taurine!! I don't think he would be happy with that either!! Lol.
I agree with PVC man about blood levels showing that you havn't got a deficiency in certain minerals, but are they OK in the tissues!! I think this as my blood was tested and everything came back OK,but I'm sure I'm still slightly deficient in magnesium as my muscles twitch a lot and that is a sign of deficiency!!
Its quite confusing!!

And a thank you to PVC man as without this site I don't know how I would have coped these last few months!!
Its great to share experiences with people who suffer the same as you!! :-)

Posted Nov 01 2013#20 of 20
alfy12User Since: Oct 2013Posts: 22Hi MSB,

My heart rate is 70 at the moment and blood pressure is normal. I'm not sure if the CCB is doing the trick or my anxiety levels are coming down. I'll give the meds a bit longer and form an opinion when I have more evidence. The early results look encouraging but only taking meds for a short time.

I think all these meds have an effect on pulse rate but the CCB less so. I'm sorry you are anxious at the moment but I know exactly how you feel. Keep your chin up and keep looking for a solution. Maybe a naturopath could be an option. We have a couple of good ones here in Wagga Wagga so I'll check one out if I become disenchanted with my doctor.

Cheers
Alf
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