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UserID: Skippy Type: CurePVCs Joined: Aug 19 2012
Thread Started: Aug 19 2012 Last Post: Aug 01 2014 Last Post By: True blue
Origin: General Topics Total Posts: 8

Living with PVC's is not a fun experience

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Posted Aug 19 2012#1 of 8
SkippyUser Since: Aug 2012Posts: 2I had my first visit from the PVCs in 1989 while working in Saudi Arabia. Quite a scary time considering I was in a foreign country with a different medical system. Went to a local doctor and he ran an ECG which showed a large number of PVCs. He told me not to worry that they were fairly common. Over time they seemed to go away and while I would have them visit every so often didn't cause great concern.

Then in 2003 I got a significant number of them. Was referred to a Cardiologist who ran all the test including Holter, Nuclear Threadmill, Echo, blood, etc. Came back that my heart was ok and other then adding a beta blocker told me to reduce caffeine and stress. After a while didn't seem to bother me and didn't have them visit again until January 2012. This time they brought many of their relatives and seems like they are here to stay. Have experienced several bad episodes with the worse happening now. Waiting on results from all the tests again to make sure heart is ok and not the primary reason for the PVC's (disease).

It's really hard to explain how bad these things make you feel to someone who does not feel them. No matter how many times they tell you they are probably ok..but, when they hit you at night, or setting down, or trying to sleep it can cause the old adrenaline rush and more PVCs. For sure you cannot let them rule your life and make you miserable. The more you learn about your condition I think the better and more comfortable you should become. Key is not to get totally overwhelmed by all the stuff on the web.

This site sure seems like it could help a lot of people and too bad has such low usage. Maybe things can change.

If you are a PVC's sufferer I wish you the best and know that there are many of us in the same condition all wanting to find the magic answer to stop these things from impacting our lives...javascript:InsertSmiley('9');
Posted Aug 22 2012#2 of 8
PVCManUser Since: Oct 2009Posts: 228Hi Skippy,

Many thanks for contributing to our site.

Your episodes sound very much like the pattern that I experienced, although I do seemed to have fundamentally suppressed them now.

I know what you mean about being overwhelmed on the web, because there's too much information and it is often ambiguous. I think one of the many problems, is that although electrolyte imbalances often seem to be the cause, it's the cause of such imbalances that is ambiguous.

The idea of this site to concentrate attention on PVCs to reduce vagueness. You are right that this site is very much under-used. We developed this site as a result of an old blog guest book I had, but I think it needs more structure.

As a result, we are currently in the process of re-developing the whole site, and one of the most sought after features for ailments such as PVCs is an event-driven timeline. These timelines would be dated events with various parameters and due to the vagueness of the cause of PVCs, should hopefully be a useful feature for sufferers.

My own experiences would fit ideally into a timeline, and it sounds like (along with many others) your experiences would also fit well into a timeline.

Thanks again for contributing, and as we move forward, I hope you will find this site evermore useful.

PVCMan
Posted Aug 22 2012#3 of 8
SkippyUser Since: Aug 2012Posts: 2PVCMan

Appreciate the response. I got clean results on my latest nuclear threadmill. See dr. in a few weeks to discuss more.
I suspect I have a magnesium levels issue because I changed my diet to reduce blood sugars and in looking back at my
food log see I had really reduced foods with magnesium as many are higher carbs. Plus, I walk around 5 miles a day and causes a lot of sweat which can also help deplete the electrolytes. I have increased my mag intake including a lot of cashews and the PVC's have improved (not gone). I also was taking Omeprozole for many years and recently learned one of the side effects can be reduced magnesium absorption. So, with my doctors agreement, I have stopped omeprozole (about a week ago) and seeing if overtime that makes a difference.

As we know, the first thing a person really needs to do when they start getting any type of PVC/PAC, etc., is to get a doctor's evaluation. Need to really make sure it's not being caused by underlying heart disease. Once it's determined that
they are just "benign" PVC's or PAC's or whatever, then a person should really try to understand more about the problem.
The key is not getting stressed out which caused adrenaline rushes and more of the darn things.

So, hope your website can really get more use and I believe can be a major help to people to be educated on the issue,
what others have done, and to be a community of support.

Best of luck. Skippy

Posted Aug 22 2012#4 of 8
PVCManUser Since: Oct 2009Posts: 228Hi again Skippy,

Not sure if you maneged to read my story which included a section about PPIs (Omeprazole, Lansoprazole etc), but it sounds like you have made a smart move getting away from them.

Best of luck
Phil
Posted Apr 11 2013#5 of 8
Michelle LimUser Since: Apr 2013Posts: 2I have them all day and my symptoms are bad. I constantly feel tired, short breath, and sometimes nauseated. I have been to a specialist who said everything looked good. Ugh, I just feel off. I don't feel my pvc half the time but I still feel crappy. People are starting to think I'm a hypochondriac because there's always something wrong with me. Like going out to dinner and I just feel terrible.
Posted Apr 17 2013#6 of 8
PVCManUser Since: Oct 2009Posts: 228

QUOTE:
People are starting to think I'm a hypochondriac because there's always something wrong with me.



I know exactly what you mean. This is one of the reasons I put this site together because true understanding only seems to come from fellow sufferers.

Even my own family don't really understand how I feel except my Dad, because in recent years he has been getting them also.

My partner never really understood what was wrong, until one day she woke up at night and my PVCs were so bad she could feel them just laying next to me in bed. Then she started to realize what I was having to deal with.

Posted Apr 17 2013#7 of 8
jrsolsjeffUser Since: Apr 2013Posts: 15I completely understand the hypochondria. It's maddening. I am treated like a crazy person by everyone including doctors at the ER. Its not easy to shake off physical symptoms of the heart. Its not like a muscle crap in the leg. Its a vital organ that should feel good if it is good. So when it doesn't feel good its hard to convince yourself you really are ok. My PVC's give me a plethora of symptoms...the kind any website would tell you to seek emergency care for. I've learned to somewhat deal with them but I have days where they still send me to the ER.
Posted Aug 01 2014#8 of 8
True blueUser Since: Jul 2014Posts: 14

QUOTE:
I completely understand the hypochondria. It's maddening. I am treated like a crazy person by everyone including doctors at the ER. Its not easy to shake off physical symptoms of the heart. Its not like a muscle crap in the leg. Its a vital organ that should feel good if it is good. So when it doesn't feel good its hard to convince yourself you really are ok. My PVC's give me a plethora of symptoms...the kind any website would tell you to seek emergency care for. I've learned to somewhat deal with them but I have days where they still send me to the ER.



I understand 100%. I have had many trips to A&E only to be sent home with no answers. I have suffered with PVCs & PACs for many years & I am still suffering. All the gps & consultants say is ' it's normal'. No way is the feeling of an ectopic heartbeat normal. If it was then every person in the world would feel them all the time like us suffers. Over the past few months, the ectopic beats have got worse. I feel like I'm surviving rather then living life. I really need some answers or a cure of some kind soon. The days are long & the nights are longer, no answers, no care & no cure

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